Saturday 26th December 2015

6.30am – midnight musings

Woke up at about 1.30am, took another Tramadol because the pain in my joints was returning. Drifted back off to sleep quickly. Woke again at 5am; pain returning – almost couldn’t move again – so took another 50mg of Tramadol. Feeling like a junkie.

I’m getting quite concerned now about my pain management. I want to know if there is anything I can do other than taking painkillers to help alleviate the inflammation. Surely I’m not going to need to take opioids for as long as I receive Infliximab.

Because it’s Christmas I don’t know who I can talk to. My IBD nurse, L, isn’t contactable until Tuesday. My GP surgery is shut today and tomorrow. What an awkward time for this all to happen.

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Friday 25th December 2015

10.45pm – I swear, my knees were giving birth

Had the night from hell last night. Woke at 2.30am, after having finally got to sleep at 1.30am once T had got back from her late shift in central, thinking surely it must be at least 5am because I feel super awake.

Then I noticed a dull ache in my knees which gradually worsened. I took two Solpadeine Max at about 3am but these didn’t hit the sides, so that by the time it got to 4.30am I was in excruciating pain.

The only way I could describe it is like my knees were giving birth. The pain was inside them, stabbing, searing away at the joints. No matter what I did, I couldn’t get relief. I tried to deal with it by myself, but eventually I had to ask T to get up with me – I couldn’t even sit and google my symptoms – I just rocked back and forth like a junkie.

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